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For children grieving a loss, may we suggest:
"This Book Is For All Kids, But Especially My Sister, Libby.  Libby Died." by Jack Simon, Annette Simon

 

RESOURCES FOR CHRONIC PAIN MANAGEMENT, END-OF-LIFE AND
 RIGHT-TO-DIE ISSUES, GRIEF AND BEREAVEMENT FOR 
ADULTS, CHILDREN AND CAREGIVERS

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Chronic pain, pain management, pain control resources, pediatric pain, grief support, bereavement, coping, global cancer links, clinical trials, self-help resources and support groups for crisis intervention, care for the dying, death with dignity, and caregiver support:


This comprehensive pain management site offers myriad international pain control resources, pain support, message boards, pain surveys, e-letters, you can Ask the Pain Doctor online, and locate a pain clinic near you.

The Mayday Pain Project tries to increase awareness and provide information about pain treatment modalities. If you're in chronic pain, or a family member, or a caregiver, this site offers resources and advice on cancer and arthritis pain, fibromyalgia, pain and depression, pediatric pain, and much more -- you don't have to face it alone.

For news about the war on pain, current articles on pain management techniques, support group contact information, suggested reading, pain control guides, and other help on breaking the cycle of pain, go to Partners Against Pain.

An outstanding 2-part series on living in pain published by the San Francisco Chronicle points out that, "At least 16,000 people die each year from gastrointestinal problems caused by nonsteroidal anti-inflammatory drugs (NSAIDs), widely used pain relievers such as ibuprofen and aspirin. Yet physicians and patients alike are often reluctant to use narcotics, the most potent alternative, because of the stigma surrounding them." This outstanding series is a real eye-opener when it comes to treatment of pain.

American Family Physician offers their overview of the treatment of nonmalignant chronic pain.  They state that "although pain is rarely eliminated, treatment should reduce daily pain level..."

Here's a Pain Glossary that includes definitions of terms related to pain and some  pain management techniques explained as well.

Weíve lost friends and loved ones to major illnesses. Thatís why life-threatening illnesses, pain management and care for the dying are important issues for us. Growth House, a richly helpful, award-winning site provides a wealth of resources for end of life care and sponsors a Web Angels Brigade.

Dr. JoAnn LeMaistre, author of "After the Diagnosis",  has helped thousands of chronic illness patients, their families and health care providers cope effectively.  Her insight on coping with chronic illness -- from the Pollyanna approach to anger, despair and depression, to renewal -- help us "cherish the good times."  She's an inspirational example of what it means to be able-hearted when you can no longer be able-bodied

The Compassionate Friends offers grief support after the death of a child, providing friendship and understanding to bereaved parents, grandparents and siblings through information, affirmation, and resources.

Coping with the loss of a loved one is life's most stressful event. The wide range of emotions you experience is healthy and appropriate, and will help you come to terms with your loss.  The National Mental Health Association helps so you know what to expect -- and be assured that mourning is a natural process.

You donít have to face grief and bereavement alone; find support groups, links, e-mail support, advice, discussions, tips on dealing with grief, coping with pet loss and more.

The loss of a loved one and the effects of the sudden loss are physically and emotionally taxing. The AARP Grief and Loss Program offers help with understanding, insight for those who are helping others cope, and suggestions on how to honor deceased loved ones.

Here's some insight from the University of Michigan to help you or someone you care about cope with grief or loss.  They also offer help with ways children cope with grief, and helping children cope with the death of a loved one.

Relatives, friends and neighbors who want to make a difference in the healing of someone's grief can help in many simple, but important ways.  Unresolved grief can lead to physical or mental illness, suicide or premature death.  Here are some ways you can be there for someone.

WidowNet
is an information and self-help resource for, and by, widows and widowers. It is helpful to people of all ages, religious backgrounds and sexual orientations who have suffered the death of a spouse or life partner and are coping with grief, bereavement, and recovery.

Last Acts is a national campaign to improve end-of-life care and focuses on managing pain and making life better for individuals and families facing death. They offer print, audiovisual, electronic and other resources including news and fact sheets.

Also concerned with end-of-life care, Americans for Better Care of the Dying (ABCD) aims to change and improve what people face as they come to the end of life. 

Here's where you'll find the latest news dealing with euthanasia and assisted suicide, and the most comprehensive archive on right-to-die and end-of-life issues, including legislation, opinion polls, research, and medical resources.

The World Federation of Right to Die Societies consists of 37 organizations worldwide working to secure or protect choices for death with dignity. 

The Hemlock Society is the nation's largest and oldest death-with-dignity association and aggressively promotes the full range of end-of-life choices for hopelessly ill, mentally-able adults.

Public Agenda researches public opinion and offers a fact file, overview and perspectives on the Right to Die issue, including people's chief concerns and recent news.

Likewise, the Compassion in Dying Federation provides client services, legal advocacy and public education to improve pain and symptom management, increase patient empowerment, and expand end-of-life choices -- its goal is a humane death and aid-in-dying for terminally ill, mentally competent adults.

Dr. Ira Byock, long-time palliative care physician and past president of the Amer. Academy of Hospice and Palliative Medicine, provides resources and links at DyingWell.org for people facing life-limiting illness, their families and caregives, to empower persons with life threatening illness and their families to live fully.

Caregiver.com offers some caregiver survival resources, family checklists, and information on hot topics like Alzheimer's, depression, nutrition, legal issues and more.

For information about cancer research studies, specific cancers, understanding clinical trials, and locating an ongoing trial, the National Cancer Institute offers cancer trials help and beyond. 

CancerWeb offers an online medical dictionary and global cancer links. 

The CenterWatch site offers a Clinical Trials Listing Service offering a wealth of information, including a listing of more than 41,000 clinical trials and newly approved drug therapies

The U.S. National Institutes of Health, through its National Library of Medicine, has developed Clinical Trials.gov to provide patients and family members with current information about clinical research studies.

The information provided on this site is designed to inform you and support, not replace, your relationship with your doctor.

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